Merry Go Round

So I've been feeling okay lately.  It turns out that all of the puking and fever might have been caused by the decrease in prednisone.  It was only by 1mg (from 5 to 4) but I hear that even that can make a big difference.  Some people have really bad withdrawl/flu-like symptoms.

I can't be sure this was the reason for my 2 weeks of misery but the day I started taking 5 mg of prednisone again, everything was fine.

Now my rheumatologist wants me to start taking 150mg of imuran instead of 100mg so we can try again with lowering the prednisone.  (Hopefully with better results.)

This sounds fine except that sometimes imuran is really hard to take.  It makes me feel weird and sick to my stomach.  I feel like I've just gotten accustomed to the dose I'm on and the thought of increasing it makes my heart feel overwhelmed. 

But since I'm a super-hero of a person, I've been doing it for the past 4 days and it hasn't been easy.

So, that's the story.

• Meds
• Doses
• Pain
• Relief
• Repeat

 Not always in that order. 

I'm so glad I have my family to keep me going.  They're on this lupus-merry-go-round with me, cheering me on as I try to keep my balance and sometimes holding me just in case I'm not strong enough to stand on my own.

Please keep praying for us and I'll keep praying for you too.